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Tallulah Willis, the youngest daughter of Demi Moore and Bruce Willis, revealed she is still navigating her autism diagnosis.
One year after she was diagnosed with the developmental disorder, the actress, who has also been open about battling an eating disorder and borderline personality disorder, shared how she is 'still exploring how it affects' her life and presents 'day-to-day.'
'Prior to my diagnosis, I noticed that my extreme sensitivity with my five senses — I’ve had a heightened sense of taste, smell, touch, sight and hearing since I was a child — was not as common for everyone else,' the 30-year-old told People.
After living with undiagnosed autism for nearly three decades, Tallulah revealed her 'goal is to help raise as much awareness and understanding around ASD as' she 'possibly can.'
She, specifically, hopes to support 'women who are more commonly misdiagnosed.'
Tallulah Willis, the youngest daughter of Demi Moore and Bruce Willis, revealed she is still navigating her autism diagnosis; seen in April 2024
According to A Center for Mental Wellness, 'adult women with autism may go undiagnosed until later in life or never receive an autism diagnosis at all.'
On their site, it is listed that '80% of females remain undiagnosed by the age of 18.'
Researchers suggest that the reasons why women tend to get diagnosed with autism later than men are that the 'symptoms may be more subtle in female.'
Additionally, women are described at being 'better at hiding their symptoms' since as girls they 'learn to copy others quickly, which camouflages or conceals their struggles.'
Tallulah will be recognized for using her platform to spread awareness about autism by the nonprofit organization, Autism Speaks, at their Los Angeles Gala in late October.
'Past honorees include Dave Grohl, J.K. Simmons, Sarah McLachlan, Alyssa Milano, Jeannie Mai, Kristin Chenoweth, Naomi Campbell,' according to People.
Georgianna Junco-Kelman, an Autism Speaks board member, said it is a 'privilege to have the support of advocates like Tallulah in calling awareness to the most pressing issues for the autistic community.'
'While we are celebrating the strides we made in driving inclusion at past Autism Speaks Los Angeles Galas, work still needs to be done to ensure there are more opportunities, particularly in the entertainment sector, that allow people with autism to reach their full potential,' Junco-Kelman continued.
One year after she was diagnosed with the developmental disorder, the actress, who has also been open about battling an eating disorder and borderline personality disorder, shared how she is 'still exploring how it affects' her life and presents 'day-to-day' (pictured with mom Demi)
In March 2024, Tallulah revealed for the first time that she's been diagnosed with autism.
She posted a throwback video of her and her father, who is battling frontotemporal dementia and aphasia, on the red carpet at the premiere of the actor's 2004 film The Whole Ten Yards, which then 10-year-old Tallulah also starred in.
With the post, she wrote: 'Tell me [you're] autistic without telling me [you're] autistic.'
In the video, a young Tallulah, who is being held by Bruce as he answers a journalist's questions, is seen fiddling with his ears and rubbing her hands over his bald head repeatedly.
Her post prompted a follower to ask about her diagnosis.
The actress responded: 'Actually this is the first time I've ever publicly shared my diagnosis. Found out this summer and it's changed my life.'
Last year, she spoke out about it for the first time (pictured in 2004 with her dad)
With the post, she wrote: 'Tell me [you're] autistic without telling me [you're] autistic'
In response to a fan who asked her about her autism, she revealed publicly for the 'first time' she was recently diagnosed and it 'changed' her life
Her sister, Scout LaRue, also wrote, 'She's stimming,' with Tallulah replying: 'Dude the ear curl. I wish we had stronger audio.'
According to the Cleveland Clinic, stimming 'is when a person repeatedly makes the same movements or sounds.'
It's a way for people to regulate their emotions and it's 'often (though not always) associated with autism spectrum disorder and other neurodevelopmental conditions.'
While it's been reported that boys are 'four times more likely' as girls to have autism, recent research has concluded that almost 80 per cent of females 'are undiagnosed as of age 18,' according to UCLA Health.
Previously the Stars On Mars personality has opened up about her battle with body dysmorphia and an eating disorder, as well as her ADHD diagnosis.
Previously the Stars On Mars personality has opened up about her battle with body dysmorphia and an eating disorder, as well as her ADHD diagnosis; seen in March 2024
'For the last four years, I have suffered from anorexia nervosa, which I've been reluctant to talk about because, after getting sober at age 20, restricting food has felt like the last vice that I got to hold on to,' Tallulah wrote for Vogue in May 2023.
She said that at the age of 25, she entered a residential treatment facility in Malibu to deal with both the eating disorder and depression she had been living with.
'It was a largely therapeutic experience; for the first time, I grieved the 15-year-old misfit me, the ugly duckling,' she said.
'I was also diagnosed with ADHD and started on stimulant medication, which was transformative.
'I felt smart for the first time, but I also started to enjoy the appetite-suppressant side effect of the meds. I saw a way to banish the awkward adolescent in favor of a flighty little pixie.'
Tallulah said that 'like so many people with eating disorders, [her] sense of myself went haywire.'
She said that 'the beginning of losing weight rapidly' led to a sense of 'unhealthy deliciousness.'
Tallulah said, 'People are like, "Oh wow!" And then quickly it turns to, "Are you okay?" My friends and family were terrified, and I dismissed it. They'd say, "Is this the ADHD medication?"'
'For the last four years, I have suffered from anorexia nervosa, which I've been reluctant to talk about because, after getting sober at age 20, restricting food has felt like the last vice that I got to hold on to,' Tallulah wrote for Vogue in May 2023
She said that she was 'very protective' of her medication and 'rationalized it' by reminding herself how it improved her focus.
'An eating disorders therapist would tell me later, the smaller you are, the bigger you feel,' the actress wrote. 'How twisted is that?'
She said that by spring of 2022, she weighed 84 pounds and was dealing with significant health complications as a result.
'I was always freezing,' she said. 'I was calling mobile IV teams to come to my house, and I couldn't walk in my Los Angeles neighborhood because I was afraid of not having a place to sit down and catch my breath.'
Her father is currently battling frontotemporal dementia and aphasia (seen together)
It's been over two years since Tallulah's stepmother Emma Heming, 45, released a joint statement via Instagram with her two daughters and Willis's ex-wife Demi Moore and daughters Rumer, Scout, Tallulah, announcing that the actor was stepping back from acting amid his aphasia diagnosis.
In the March 30, 2022 statement, they said that Willis had been 'experiencing some health issues and has recently been diagnosed with aphasia, which is impacting his cognitive abilities.'
It continued: 'As a result of this and with much consideration Bruce is stepping away from the career that has meant so much to him. This is a really challenging time for our family and we are so appreciative of your continued love, compassion and support.
'We are moving through this as a strong family unit, and wanted to bring his fans in because we know how much he means to you, as you do to him. As Bruce always says, "Live it up" and together we plan to do just that.'